Effective date: October 7, 2026

CIDP Tracker helps people with chronic inflammatory demyelinating polyneuropathy (CIDP) keep track of their symptoms and treatments. Health information is personal, so this policy explains exactly what happens to yours. It covers CIDP Tracker on iPhone and on Android.

The short version

Everything you log is stored on your phone. On iPhone, if you choose to, you can share an anonymised copy of your log to help build a picture of CIDP. Sharing is off until you turn it on, and you can turn it off at any time. The Android app has no sharing at all. Your data is never sold, never used for advertising, and never used to track you.

What stays on your phone

Your symptom scores, treatments, stress and mood, sleep, activity, lifestyle entries, and notes are saved on your phone. There is no account and no sign-in. If you delete the app, this data is deleted from your phone with it.

If your phone backs up to iCloud or to your Google account, the backup includes a copy of your log. Apple or Google keeps it under your account, and we never see it. You can also export your log as spreadsheet files at any time; where those files go is up to you.

Apple Health (iPhone)

If you allow it, CIDP Tracker reads your sleep, steps, and exercise minutes from Apple Health, and calories eaten if you turn calorie tracking on. It never writes anything to Apple Health. You can change or remove this access at any time in the Health app. Data read from Apple Health is never used for advertising or marketing, never sold, and never shared except as part of the optional sharing described below.

Health Connect (Android)

If you allow it, CIDP Tracker reads your sleep from Health Connect, including time awake and deep and REM sleep when a tracker recorded them, along with your steps and exercise minutes, and calories eaten if you turn calorie tracking on. Each is read only while the setting that uses it is on, and only for the last seven days, each time you open or return to the app. CIDP Tracker never writes to or changes your Health Connect data.

What it reads is saved in your log on your phone. Sleep and calories are shown with the day they belong to and in the app's charts and insights, and everything it reads is included when you export your log. Apart from your own phone backup, described above, it is never sent to us or to anyone else. It is never used for advertising or marketing, never sold, and never used to make decisions about credit, insurance, or employment. It stays in your log for as long as you keep the app, and is deleted with it. You can change or remove CIDP Tracker's access at any time in Health Connect's settings.

Optional anonymous sharing (iPhone only)

CIDP is rare, and the day-to-day experience of living with it is poorly documented. With your permission, CIDP Tracker on iPhone can send us an anonymised copy of your log. We are working towards a partnership with CIDP researchers, and logs like yours are what make that possible. The Android app doesn't offer sharing, so nothing you log on Android is ever sent.

It is opt-in. Nothing is shared unless you turn on sharing in the app and confirm that you agree. You must be 18 or older to take part.

What is shared: the entries in your log (symptom scores, stress and mood, sleep, steps, exercise, calories, the alcohol, nicotine, and cannabis counts you track, and your treatments with their type and dose), each with its date, together with a random identifier created on your phone and the app version. The random identifier lets entries from the same person be linked together without revealing who that person is.

What is never shared: your name, Apple ID, email address, phone number, contacts, location, photos, device or advertising identifiers, or the free-text notes you write, since notes could contain personal details.

How it is used: your anonymised log is kept by CIDP Tracker while we work towards a partnership with CIDP researchers, to build a picture of how symptoms and treatment change across the people who take part. It is not shared with any researcher or organisation yet. Before anything goes to a research partner, the app will tell you who they are and ask for your permission again, and any partner would have to agree never to try to identify anyone. We will never sell your data or share it with advertisers, data brokers, insurers, or employers.

How anonymous is it? The shared data contains nothing that names you. Detailed health records can, in rare cases, be linked back to someone when combined with other information, so we limit who can access the data and forbid anyone we share it with from trying.

Changing your mind: you can stop sharing at any time in the app's Settings. Nothing more is sent, and the app asks us to delete everything you've shared. If your phone was offline when you stopped, or you would like us to confirm, email us the ID shown on the sharing screen in Settings and we will delete your data within 30 days. The app forgets that ID when you stop, so note it down first. Data already included in published aggregate findings cannot be removed from them.

Feedback

If you send feedback from the app, your message reaches us with the app's version and your phone's system version (iOS or Android), and nothing else. It carries no name, email address, or identifier, so we can't reply to it or tell who sent it. It is delivered through our own server and kept as a private message. Because it can't be traced back to you, we can't find a particular message to delete it later, so please don't include details you wouldn't want us to keep.

Storage and security

Your log is kept in the app's private storage on your phone, which other apps can't read, and is protected by your phone's own encryption. Shared data and feedback are encrypted while they are sent, and shared data is also encrypted while it is stored, with access limited to the people who need it. We keep shared data for as long as it is useful in building a picture of CIDP, or until you stop sharing or ask us to delete it.

No tracking or advertising

There are no ads, no third-party advertising or analytics trackers, and no in-app purchases. CIDP Tracker does not track you across other apps or websites.

Your rights

Depending on where you live, you may have the right to access, correct, or delete personal data held about you, or to object to its use. Email us to exercise any of these rights. Because the app has no accounts, we will ask for the ID shown on the sharing screen so we can find your data.

Children

CIDP Tracker is meant for adults, and sharing is only available to those aged 18 and over. We do not knowingly collect data from children.

Not medical advice

CIDP Tracker is a personal log, not a medical device. It does not diagnose or treat any condition. Always talk to your doctor before changing your treatment.

Changes to this policy

If this policy changes, the updated version will be posted on this page with a new effective date. If a change affects what is shared, the app will ask for your permission again before sharing anything.

Contact

Questions about privacy? Email hello@alborz.design.